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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >

News

  • Connecticut Establishes a Permanent Rare Disease Advisory Council

    “CT RDAC aims to better address the unique needs of rare disease community ”

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  • Summerly’s Rare Journey

    “Read about Summerly and her family's rare disease journey.”

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  • 澳洲幸运10开奖直播视频, 幸运体彩澳洲10官网结果历史查询

    “NORD Applauds Legislative Efforts to Restore Intent of the Orphan Drug Act within H.R. 7667, the Food and Drug Amendments of 2022, and with Introduction the Retaining Access and Restoring Exclusivity (RARE) Act ”

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  • NORD Hosts the Largest Gathering of a Rare, Post-Transplant Cancer in History

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