RDCA-DAP Archives - NORD (National Organization for Rare Disorders)

December 17, 2021

The Importance of Patient Voices and Data Analytics

Posted at December 12, 2021 09:00 am by Maia Craig

NORD, in partnership with the Critical Path Institute (C-Path) is proud to announce a two-part video series on patient-focused drug development (PFDD) as part of our Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP) initiative.

The first video, What is Patient-Focused Drug Development (PFDD)?, provides a brief explanation of what patient-focused drug development is and how the patient voice is incorporated into… Read More

Tags: research, RDCA-DAP, PFDD

October 5, 2021

TOPIC: Research, RDCA-DAP

Rare Disease Cures Accelerator-Data and Analytics Platform – Logo Development Request for Proposal

Posted at October 10, 2021 12:26 pm by Rohan Narayanan

This Request for Proposal (RFP) is for the creation of a logo and branding guidelines for the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP®), a project led by Critical Path Institute (C-Path) and the National Organization for Rare Disorders (NORD) with funding and support from the U.S. Food and Drug Administration (FDA) [Critical Path Public-Private Partnerships Grant Number… Read More

Tags: NORD, FDA, IAMRARE, RFP, Rare Disease Cures Accelerator Data and Analytics Platform, RDCA-DAP, C-Path, Critical Path Institute, Request for Proposal, Logo

September 15, 2021

TOPIC: Press Releases, Research, RDCA-DAP

Rare Disease Innovation and Data Sharing Accelerated by New RDCA-DAP Program

Posted at September 9, 2021 08:30 am by Rohan Narayanan

TUCSON, Ariz. and WASHINGTON, September 15, 2021 — The Rare Disease Cures Accelerator-Data and Analytics Platform initiative (RDCA-DAP®) officially launched its next phase on Tuesday establishing itself as the leading platform to accelerate rare disease treatment innovation. The launch was part of an all-day virtual workshop and annual meeting of rare disease stakeholders, featuring a platform demonstration, industry expert presentations… Read More

Tags: NORD, FDA, RDCA-DAP, C-Path, The Rare Disease Cures Accelerator-Data and Analytics Platform, Data

December 16, 2020

TOPIC: Featured News, Patients & Members, Research, Advocacy, RDCA-DAP

In Final Installment of Video Series, Patient Advocacy Group Leaders Share Thoughts on the Importance of Participation in RDCA-DAP

Posted at December 12, 2020 08:31 am by Valaree DonFrancesco

The Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP) initiative will allow patient organizations to leverage the data they have collected to accelerate understanding of disease progression, clinical outcome measures and biomarkers for rare diseases. It will increase the efficiency of data analysis, and hopefully expedite treatments for rare diseases individually and for Read More

Tags: NORD, VHL Alliance, rare disease treatments, National Organization for Rare Disorders, patient advocacy, Foundation for Prader-Willi Research, Congenital Hyperinsulinism International, Rare Disease Cures Accelerator Data and Analytics Platform, RDCA-DAP, C-Path, Critical Path Institute

December 9, 2020