The Gorlin Syndrome Alliance and NORD Launch Natural History Study for Gorlin Syndrome

Written by Valaree DonFrancesco on November 18, 2021

Reading, PA, November 18, 2021—Today, the Gorlin Syndrome Alliance (GSA) and the National Organization for Rare Disorders (NORD)® launched the largest-ever study to research Gorlin syndrome, a rare disease that currently has no cure.

The new study, the Gorlin Syndrome Alliance Patient Registry (GSAPR), creates a platform for patients around the… Read More