Industry Archives - Page 3 of 12 - NORD (National Organization for Rare Disorders)

October 9, 2020

TOPIC: Press Releases, Featured News, Medical, Patients & Members, Research, Advocacy, Industry, Events

NORD Highlights New Era of Innovation and Public Health Awareness in Virtual 2020 Rare Diseases and Orphan Products Breakthrough Summit

Posted at October 10, 2020 10:45 am by Valaree DonFrancesco

Washington, DC, October 9, 2020—On October 8 and 9, the National Organization for Rare Disorders (NORD®) virtually hosted the 2020 Rare Diseases and Orphan Products Breakthrough Summit, the first time the organization representing over 25 million Americans impacted by rare diseases has presented the conference exclusively… Read More

Tags: Peter L. Saltonstall, Capitol Hill, NORD Summit, Rare Diseases and Orphan Products Breakthrough Summit, Cure SMA, Rare Impact Awards, American Porphyria Foundation, MD, US Food and Drug Administration, Takeda, Eversana, Insmed, Retrophin, Cystic Fibrosis Foundation, FDA Commissioner Stephen Hahn

September 10, 2020

TOPIC: Press Releases, Featured News, Patients & Members, Research, Advocacy, Industry

2020 NORD Summit to Feature Leading Experts in Public Policy, Patient Advocacy, Rare Disease Research and Regulatory Science

Posted at September 9, 2020 10:29 am by Valaree DonFrancesco

Washington, DC, September 10, 2020–At a time when it is vitally important for the rare disease community to come together, the National Organization for Rare Disorders (NORD®) has announced a program of broad-ranging topics with speakers of unparalleled expertise for the 2020 NORD Rare Diseases and Orphan Products Breakthrough Summit, taking place… Read More

Tags: HHS, Peter L. Saltonstall, FDA, NIH, NORD Summit, Center for Drug Evaluation and Research, Peter Marks, Rare Diseases & Orphan Products Breakthrough Summit, MD, covid-19, US Department of Health and Human Services, Center for Biologics Evaluation and Research, Center for Innovation in Global Health, Patrizia Cavazzoni, Entering a New Era, Congresswoman Robin Kelly

August 25, 2020

TOPIC: Featured News, Patients & Members, Research, Advocacy, Industry

NORD CEO Affirms Science Should Guide FDA’s Work

Posted at August 8, 2020 06:18 pm by Valaree DonFrancesco

“Since 1906, FDA’s dedicated career employees have worked tirelessly to ensure that Americans have access to the safest supply of products we rely on every day, including food, drugs and medical devices. As a result, the US regulatory system sets the gold standard for the rest of the world. FDA’s credibility is of utmost importance to ensuring patients and… Read More
Tags: FDA, regulatory agencies

June 11, 2020

TOPIC: Featured News, Patients & Members, Industry

2020 Rare Diseases & Orphan Products Breakthrough Summit Will Be a Virtual Event, Oct. 8-9

Posted at June 6, 2020 12:09 pm by Valaree DonFrancesco

We are at a pivotal time in rare disease, one that requires new approaches and fresh perspectives in order to achieve real progress. Given the impact of the COVID-19 pandemic on clinical trials, drug development, and pharmaceutical innovation, connecting stakeholders and advancing meaningful dialogue is now more critical than ever to improving the lives of over 25 million Americans… Read More

Tags: NORD Summit, Rare Impact Awards, Rare Diseases & Orphan Products Breakthrough Summit, drug pricing, #NORDSummit, covid-19

March 20, 2020

TOPIC: Featured News, Medical, Patients & Members, Industry, COVID-19

COVID-19 Resources for Non-profit Leaders and the Community

Posted at March 3, 2020 09:32 am by Valaree DonFrancesco

The health and safety of those with rare diseases and their caregivers are always our top priorities at the National Organization for Rare Disorders (NORD). We know our members are working tirelessly to support their communities during this global crisis. Rare disease organizations have felt the impact of the coronavirus pandemic on all elements of our work including mission-critical… Read More

Tags: patients, Families, coronavirus, covid-19, covid19, resources, health crisis, non-profit leaders, nonprofit organizations