Partnerships

In 2009, NORD entered a strategic partnership with the EURORDIS- Rare Diseases Europe, which was just renewed in March, 2015. The goal is to support policies and practices that:

• facilitate research
• encourage development of innovative treatments
• advance awareness and understanding of rare diseases
• ensure patient access to care
• encourage a more patient-centered healthcare system
• help break the isolation of the people living with rare diseases

NORD partners with Frontline Medical Communications to provide information about rare diseases to physicians and other healthcare professionals. Recent publications include the following.

• Neurological Rare Disease Special Report
• Huntington’s Disease: Emerging Concepts in Diagnosis and Treatment
• Homozygous Familial Hypercholesterolemia

In January 2012, NORD signed a Memorandum of Understanding with the Japan Patients Association, an organization that represents patients with rare and “intractable” diseases (chronic and not responding to treatment) in Japan.

A declaration of shared commitment to improving the lives of rare disease patients and families, the partnership specifies that the two organizations will share information about current advocacy initiatives and seek ways to increase understanding and communication between rare disease patients and patient organizations in Japan and the U.S.

NORD’s partnership with The Mighty strives to help raise awareness of rare diseases and connect The Mighty’s wide-reaching readership with NORD’s educational, advocacy and other resources. The Mighty is a story-based health community focused on improving the lives of people facing disease, disorder, mental illness and disability. We encourage you to submit a story to The Mighty and make your voice heard.  Visit the rare diseases page on The Mighty’s website to read others’ stories.

NORD partners with Osmosis to create educational videos for patients, caregivers, medical professionals and students. These videos are available free to all in the NORD Rare Disease Video Library and on the Osmosis medical education platform.  

NORD’s partnership with PlatformQ Health, a leading provider of digital education, delivers accredited online education about rare diseases. Recognizing the need for accessible, engaging and effective digital education on rare diseases, NORD and Platform Q equip healthcare professionals with the information they need to diagnose rare diseases faster and to improve patient outcomes. The partnership also provides targeted online education for patients and caregivers

NORD has partnered with annual media partner Touch Medical Media since 2022. TMM has been educating physicians on a fully global scale since 2005. Learn more and explore their variety of resources.
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