Rare Disease Day
SHARE YOUR STORY

NORD invites you to share your story. Join the individuals and families who have contributed their personal accounts of living with rare diseases. Alone we are rare. Together we are strong!

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Rare Disease Day

How has your life been impacted by rare disease? Please share if you are a patient or a caregiver and which rare disease has affected your life.

Why is Rare Disease Day important to you?

What is one thing you'd like the public to know about rare disease and the challenges patients and caregivers face?

The 2022 global theme for Rare Disease Day is "Health Equity." What does equity in health mean to you?

How will you be showing your stripes for Rare Disease Day?

Your photo(s), video(s) or audio recording(s)

Videos should be under 2mins and in .mov or .mp4

Drop files here or

Accepted file types: jpg, jpeg, png, mov, mp4, Max. file size: 50 MB.

Terms & Conditions

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In these Standard Terms and Conditions, “Your Content” shall mean any audio, video, text, images, or other material you provide or display. By providing Your Content, you grant NORD a license to use, reproduce, adapt, modify, publish, translate, and distribute it in our marketing materials and to all media. Your Content must be your own and must not invade any third‐party’s rights. When you submit content or information to NORD it means that you are allowing the public to access and use that information, and to associate it with you. NORD reserves the right to remove Your Content at any time, without notice. We take your privacy very seriously. Subject to the Terms and Conditions above, NORD will never sell or disclose your personal information.

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Rare Disease DaySHARE YOUR STORY

Your Information

Rare Disease Day

Terms & Conditions

Rare Disease Day
SHARE YOUR STORY