The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
4915 St. Elmo Ave, Suite 200
Bethesda, MD 20814 USA
301-347-7166
301-312-8719
866-273-3635
The American Porphyria Foundation (APF) is a national voluntary health organization established in 1981 to enhance public awareness of the porphyrias and to aid in advancing treatments of these disorders. Porphyria is a group of rare genetic disorders characterized by disturbances of porphyrin metabolism. The foundation assists people with porphyria and physicians by serving as an information source and exchange. It also provides individuals with the opportunity to participate in research, support groups, political action programs, seminars, and fund-raising projects. The foundation produces a variety of publications including a general brochure and several disease specific brochures.
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