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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Angelman Syndrome Foundation, Inc.



Address

3015 E. New York Street
Suite A2 #285
Aurora, IL 60504 USA

Phone

(630) 978-4245

Fax

(630) 978-7408

800 Number

8004326435

Email Address

[email protected]

Description

The Angelman Syndrome Foundation, Inc., (ASF) is a non-profit organization. Its mission is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families, and other concerned parties. Angelman syndrome is a rare genetic disorder characterized by mental and motor retardation, absence of speech, muscular abnormalities, unprovoked laughter, and characteristic facial abnormalities. Established in 1992, the Angelman Syndrome Foundation offers national, regional, and local support systems for affected individuals and their families. It also promotes and supports research on the diagnosis, treatment, management, and prevention of Angelman syndrome. The Angelman Syndrome Foundation offers a variety of educational and support materials through its web site, regular newsletter, brochures, pamphlets, and audiovisual materials.

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