To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Association for Frontotemporal Degeneration (AFTD)


2700 Horizon Drive, Suite 120
King of Prussia, PA 19406



800 Number


Email Address

[email protected]


The Association for Frontotemporal Degeneration (AFTD) is a national 501(c)(3) nonprofit dedicated to bringing about a world with compassionate care, effective support, and a future free of frontotemporal degeneration, the most common dementia for people under age 60. We provide practical, accurate information to people affected by FTD each year via our website, newsletters and toll-free HelpLine; fund important grants that drive scientific research in the understanding, diagnosis and treatment of FTD; and cultivate a community of people whose lives have been affected by FTD who can support each other and lessen the isolation so common to this disease.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.