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3306 Bumann Rd
Encinitas, CA 92024 United States
858-775-9978
858-756-1059
800-377-6677
The Children's PKU Network (CPN) is a non-profit organization dedicated to providing support and services to children with phenylketonuria (PKU), their families, and all those involved in the treatment of this disorder. PKU is a metabolic disorder characterized by severe mental retardation, seizures, and/or other abnormalities that may be prevented through early restriction of dietary phenylalanine. The network serves as a central operational base to assist in the gathering and dissemination of information on PKU and other related disorders, operates a national network hotline to provide PKU families with information about PKU clinics and support groups in their area, seeks to educate legislators concerning the needs of PKU families, and establishes programs for college scholarships, crisis intervention, and research. The Children's PKU Network also provides a variety of educational and support materials through its informational database, regular newsletter, reprints of medical journal articles, pamphlets, booklets, brochures, videos, and materials specifically for affected children.
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