The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
370 Lexington Avenue
Suite 2100
New York, NY 10017
212-344-6633
212-747-0004
The Children's Tumor Foundation (CTF) Ending Neurofibromatosis Through Research, formerly known as the National Neurofibromatosis Foundation, is a not-for-profit, voluntary organization dedicated to improving the well-being of individuals and families affected by neurofibromatosis type I (NF1) and type II (NF2). NF1 is a rare inherited disorder characterized by the development of multiple benign tumors on the covering of nerve fibers and the appearance of brown spots and freckles on the skin. NF2 is a rare inherited disorder characterized by the development of benign tumors on both auditory nerves and in other areas of the body. Established in 1978, the foundation is dedicated to sponsoring scientific research aimed at finding the causes and cures for the neurofibromatoses, promoting the development of clinical activities, creating public awareness, and providing patient support services. In addition, NNFF promotes education of healthcare professionals, offers patient advocacy, and provides referrals to genetic counseling and support groups. It offers information through its directory, database, pamphlets, newsletters, handbooks, and audio-visual aids. The foundation supports several languages including English, Spanish, French, Italian, Vietnamese, Turkish, Arabic, Greek and Chinese. Facebook: https://www.facebook.com/childrenstumor/
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