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Choroideremia Research Foundation, Inc.



Address

23 East Brundreth St
Springfield, MA 01109-2110

Phone

4137812274

Email Address

[email protected]

Description

The Choroideremia Research Foundation, Inc., is an 501(c)(3) international non-profit organization whose membership is comprised of persons with choroideremia, their families, and concerned friends. Choroideremia is a genetic disorder of sight that usually affects males. Female carriers may have mild symptoms without loss of vision. Major symptoms include a progressive loss of the central field of vision and night blindness during childhood. Established in 2000, the foundation serves members worldwide with a newsletter and other educational materials, advocacy, networking and support groups, and by supporting research.

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