The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
The Clear Cell Sarcoma Foundation (formerly Sara’s Cure) is a Charleston, SC based 501(c)(3) with a mission to make Clear Cell Sarcoma survivable through education and scientific research while ensuring all patients and caregivers impacted have a voice and platform to enact change and strive towards the cure. With the help of our medical advisors we fund repurposed drug testing on promising drug candidates that have potential as an effective treatment for CCS. We also fund travel support through NORD’s patient assistance program for the Apollo613 clinical trial (NCT04593758), the first of its kind based on solid CCS preclinical evidence. Clear Cell Sarcoma Foundation is where patients have a voice.
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