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Webinar Series

NORD hosts monthly webinars for member organizations. We feature topics frequently requested by members, including research collaboration, event planning and best practices for engaging your board. In addition to these regularly scheduled webinars, there are occasionally special webinars added to the schedule with an important topic and/or guest.


Have a suggestion for a webinar? Let us know:

Contact the team at [email protected]

Past Webinars

May 2021Grow and Diversify Your Board: When, Why and How
March 2021RareLaunch Resource: Creating Your Medical Advisory Board
February 2021Diversity, Equity, and Inclusion in Action: Case Studies from NORD’s Rare Cancer Coalition
January 2021Hosting Events Amid the Pandemic: Live and Virtual Tips
December 2020Policy Team Power Hour
November 2020Election Results and Rare Diseases: What’s on the Horizon
September 2020Rare Diseases, COVID-19 and Voting Safely this Fall
July 2020Building a Village: How to Re-Engage Your Board Members, Leaders and Volunteers
June 2020Crisis Communications: COVID-19 and the Future
June 2020Fundraising in a Pandemic
June 2020Considerations when Transitioning to Virtual Events
May 2020What You Need to Know About the Rare Disease Cures Accelerator-Data and Analytics Platform
March 2020CDMRP – Department of Defense Funding for Rare Disease
March 2020Building Your Case: Fundraising for Your Organization
November 2019Fundraising: Activate your Board
September 2019Grant Writing for Rare Diseases
July 2019Increase Donations with Financial Transparency
May 2019FDA Request to Connect Online Portal
March 2019Maximizing Your Impact with BoardSource
January 2019The Cost of Rare Disease Drugs
December 2018FDA Patient-Focused Drug Development
October 2018ICD-10 Codes
July 2018DOD Funding for Your Rare Disease Research
May 2018Board Management
March 2018Fundraising
January 2018Rare Disease Day 2018
November 2017Federal Policy on Access and Reimbursement Issues
September 2017Free Promotion of Your Events and Disease Awareness!
July 2017Physician Education and Continuing Medical Education (CME)
May 2017Natural History Studies & Patient Registries
March 2017ICD-10 Codes and Applications

Special Ad-Hoc Webinars

August 2017The National Center for Advancing Translational Sciences: Catalyzing Translational Innovation in Rare Disease ResearchChristopher Austin, MD, Director, NCATS, NIH
November 2017NORD CEO Talk on Analyzing Orphan Drug Use and Cost: Quintiles StudyPeter Saltonstall, President and CEO
April 2018PCORI FundingEleanor Perfetto, PhD, MS, Senior VP of Strategic Initiatives for the NHC
July 2017Physician Education and Continuing Medical Education (CME)

Value of Membership

These opportunities are available as a benefit to NORD member organizations
Take advantage of these opportunities by applying for membership today!