The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
3 Higgins Drive
Vernon, NJ 07462 USA
The DeSanto-Shinawi community was created to help identify new patients, promote further research, and raise funds to aid in the treatment and cure of DESSH, a neurodevelopmental disability caused by a mutation of the WAC gene. Facebook: https://www.facebook.com/curedessh/ Twitter: https://twitter.com/CureDessh
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