The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
12030 Sunrise Valley Drive, Suite 450
Reston, VA 20191 USA
The mission of the DHPS Foundation is to help identify and assist individuals with rare genetic disorders, and to work with interested researchers to develop treatment options and cures for those disorders. The Foundation’s initial focus is on increasing awareness and understanding of patients with DHPS deficiencies and evaluating potential treatments to address those deficiencies. Facebook: https://www.facebook.com/curedhps Twitter: https://twitter.com/curedhps
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