To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Hydrocephalus Association


4340 East West Highway Ste 950
Bethesda, MD 20814 USA





800 Number


Email Address

[email protected]


The Hydrocephalus Association is a national, non-profit organization that provides support, education and advocacy for families, individuals and professionals dealing with the complex issues of hydrocephalus, the abnormal accumulation of cerebrospinal fluid within the brain. Established in 1983, the organization provides a variety of services including an outreach program that provides one-on-one support; an annual scholarship awarded to young adults with hydrocephalus; and a biennial national conference. Educational materials include books, resource guide, directory of neurosurgeons and a quarterly newsletter.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.