The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
P.O. Box 581
Sherman, CT 06784 USA
The Julia’s Wings Foundation (JWF) is a non-profit charitable organization that provides financial to families of children with life threatening hematological diseases and to medical professionals for healthcare research. The foundation provides financial support to these families to cover costs of travel, lodging, and other living expenses for qualified participants. In addition, Julia’s Wings Foundation seeks to promote the advancement of research for Aplastic Anemia through contributions to organizations and individuals dedicated to this endeavor.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.