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PO Box 97
Chatham, NY 12037 USA
The M-CM Network is a voluntary organization whose mission is to improve the lives of individuals with macrocephaly-capillary malformation (M-CM). Their primary goal is to establish and maintain a registry for M-CM in order to improve diagnosis and better understand the natural history of the syndrome. M-CM Network also publishes detailed medical information on their website. M-CM is a rare, complex disorder of the skin and other organs that is present at birth (congenital). Affected individuals have a disproportionately large head and pink-to-red lacy patches (vascular malformations) on the skin of the trunk, limbs and middle portion of the face.
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