The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
PO Box 97
Chatham, NY 12037 USA
The M-CM Network is a voluntary organization whose mission is to improve the lives of individuals with macrocephaly-capillary malformation (M-CM). Their primary goal is to establish and maintain a registry for M-CM in order to improve diagnosis and better understand the natural history of the syndrome. M-CM Network also publishes detailed medical information on their website. M-CM is a rare, complex disorder of the skin and other organs that is present at birth (congenital). Affected individuals have a disproportionately large head and pink-to-red lacy patches (vascular malformations) on the skin of the trunk, limbs and middle portion of the face.
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