Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Melorheostosis Association


Address

410 East 50th Street
New York, NY 10022

Email Address

[email protected]

Description

The Melorheostosis Association is a non-profit organization dedicated to finding the cause, treatments and cure for melorheostosis. This is a rare condition that affects both bone and soft tissue. It can result in severe functional limitation, pain and deformity. The Melorheostosis Association hosts an annual conference for patients, physicians, and researchers, and also publishes a newsletter. Its web site provides information for patients and families, as well as for treating physicians, researchers and other professionals.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.