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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.



PO Box 51474
Boston, MA 02205





Email Address

[email protected]


The MitoAction is a voluntary, non-profit organization whose mission is to improve quality of life today for all adults, children and families affected by mitochondrial diseases through support, education, outreach and advocacy initiatives. Mitochondrial diseases are hereditary disorders that affect the ability of cells within the body to produce energy. MitoAction serves patients and families in the United States, Canada, Europe & Australia, and collaborates with physicians and researchers across the globe to bring current and relevant information to the patient community.

Please Note

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NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.