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Myhre Syndrome Foundation


25 Creekwood Circle,
Richardson, TX 75080 USA

Email Address

[email protected]


 Myhre Syndrome Foundation is dedicated to serving Myhre syndrome families by providing a network of hope and support and collaborating with scientific and medical communities to encourage and fund promising research. Our goals are simple – To educate the public and the medical community to ensure early diagnosis and proper treatment; To promote safe and effective treatments through advocacy, research funding and a comprehensive patient registry; To provide a caring and supporting community for Myhre patients and families. Facebook: Twitter:

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