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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Myositis Association


Address

1940 Duke Street
Suite 200
Alexandria, VA 22314 USA

Phone

703-553-2632

Fax

703-548-9446

800 Number

800-821-7356

Email Address

[email protected]

Description

The Myositis Association (TMA) is an international non-profit organization dedicated to helping people with inflammatory myopathies through a variety of programs. Inflammatory myopathies are a group of muscle disorders characterized by inflammation and degeneration of the skeletal muscles. These disorders include dermatomyositis, polymyositis, inclusion body myositis and juvenile forms of myositis. Established in 1993, the association provides continuing education to physicians through symposia, maintains a database for collaboration with medical scientists, and funds research into the causes, treatment and eventual cure of inflammatory myopathies. TMA provides extensive services for myositis patients and their families. TMA organizes national conferences featuring world-renowned speakers, and produces numerous newsletter, which provide education, and articles that enhance the lives of individuals with inflammatory myopathies. The association also provides area support groups and an active online community for patient and family support.

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