The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
1940 Duke Street
Alexandria, VA 22314 USA
The Myositis Association (TMA) is an international non-profit organization dedicated to helping people with inflammatory myopathies through a variety of programs. Inflammatory myopathies are a group of muscle disorders characterized by inflammation and degeneration of the skeletal muscles. These disorders include dermatomyositis, polymyositis, inclusion body myositis and juvenile forms of myositis. Established in 1993, the association provides continuing education to physicians through symposia, maintains a database for collaboration with medical scientists, and funds research into the causes, treatment and eventual cure of inflammatory myopathies. TMA provides extensive services for myositis patients and their families. TMA organizes national conferences featuring world-renowned speakers, and produces numerous newsletter, which provide education, and articles that enhance the lives of individuals with inflammatory myopathies. The association also provides area support groups and an active online community for patient and family support.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.