The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
401 Madison Avenue
Suite B
Fort Atkinson, WI 53538-0049
9205630930
9205630931
8772873672
The National Niemann-Pick Disease Foundation, Inc., is an international, voluntary, non-profit organization made up of parents, medical professionals, friends, relatives, and others who are committed to finding a cure for Niemann-Pick disease (NPD). Niemann-Pick is a group of rare inherited diseases in which excessive amounts of a fatty substance called sphingomyelin and/or cholesterol accumulate in many organs of the body. Established in 1991, the National Niemann-Pick Disease Foundation is dedicated to promoting medical research into the cause and cure of Niemann-Pick disease; providing medical and educational information to assist in the correct diagnosis and referral of children with Niemann-Pick disease; and providing support to families of affected children. The foundation is also committed to facilitating genetic counseling for parents who are known carriers of Niemann-Pick disease; encouraging the sharing of research information among scientists; and supporting legislation that is beneficial to affected individuals and family members. The National Niemann-Pick Disease Foundation conducts a national conference and provides a variety of educational and support materials.
Please Note
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.
