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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


National Scleroderma Foundation


Address

300 Rosewood Drive, Suite 105
Danvers, MA 1923 USA

Phone

9784635843

Fax

9784635809

800 Number

8007224673

Email Address

[email protected]

Description

The National Scleroderma Foundation is a relentless force in finding a cure and improving the lives of people affected by scleroderma. Its mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Supported by a network of thousands of individuals across the United States, the Foundation is the leading nonprofit funder of peer-reviewed research to discover the cause, understand the mechanisms, and overcome scleroderma forever.  Its signature National Scleroderma Conference and Kids Get Scleroderma, Too! Conference provide access to world-renowned scleroderma experts and are the central meeting ground of the scleroderma community.  Scleroderma is a rare rheumatic disease that affects connective tissue and the vascular system causing an overproduction of collagen (fibrosis) in the skin (localized scleroderma), and the internal organs (systemic sclerosis), which can be life-threatening.  Anyone can have scleroderma. The cause is not yet known and there is no cure.

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