Rare Disease Resources
NORD’s team of medical writers works closely with medical professionals and disease-specific organizations to provide accurate and detailed disease information. By raising awareness of rare diseases among physicians and other medical professionals, NORD strives to help patients obtain earlier diagnosis and appropriate treatment.
NORD’s Rare Disease Database provides information about rare diseases for patients, their families and the public. Each disease report is written or reviewed by a medical expert on the topic. Each includes referrals to patient organizations and other resources. Search NORD’s Rare Disease Database >
Family physicians, pediatricians and other primary care clinicians play an important role in early identification and long-term management of rare diseases. NORD’s Online Physician Guides are a free, easy-to-access resource for clinicians written by medical experts to promote diagnosis and treatment for patients. These guides are written for both specialist and generalist.
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NORD provides useful medical publications through its collaborations with medical societies, educational institutions and medical publishers. Through partnerships with Frontline Medical Communications and Medscape, NORD and its members provide resources to help physicians and other medical professionals provide care that addresses the special and complex needs of people living with rare diseases.
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