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Resources for your Patients

NORD provides the following programs and services that may support your patients. We encourage you to share this information to help your patients connect with others living with rare diseases and to facilitate access to additional resources.


Rare Disease Information

NORD’s Rare Disease Database provides information about rare diseases in non-technical language for patients and their families.


Clinical Trials

Information is provided about current clinical trials with links to the study descriptions on and a selection of the rare disease trials on NORD’s website.


Patient Registries

Read about NORD’s disease-specific patient registries. These registries will allow patients around the world to share relevant data, connect with researchers and support data collection in order to provide natural history information to help medical researchers better understand how diseases develop and progress over time.


Other Resources and FAQs

NORD has compiled a list of resources that can help individuals with questions related to financial, insurance, legal, and other disability support services. View >