The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
#16/2, Sri Krishna Krupa, 19th Cross
8th Main, kashimutt Road
Malleshwaram, Bengaluru, Karnataka 560055 India
ORDI is a national umbrella organization representing the collective voice of all patients with rare diseases in India. ORDI's objectives include public policy development/implementation to cover rare, undiagnosed and genetic diseases patients in India; accelerating diagnosis and treatment options for patients with rare diseases through public-private partnerships; advocating for mandatory newborn screening; representing India in international consortia such as IRDiRC, UDN, ICORD, etc.; and organizing national and international conferences to bring all stakeholders of rare diseases together for debates and discussions. Facebook: https://www.facebook.com/ordindia/ Twitter: www.twitter.com/ordindia
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