The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
804 W. Diamond Ave, Suite 210
Gaithersburg, MD 20878 USA
3019470083
3019470456
8009812663
The Osteogenesis Imperfecta Foundation (OIF) is a non-profit organization dedicated to improving the quality of life for individuals affected by osteogenesis imperfecta through research, education, awareness, and mutual support. Osteogenesis imperfecta (OI) is a genetic disorder characterized by abnormally fragile bones. Established in 1970, the foundation offers information and support to affected individuals, family members, and health professionals. It also funds and encourages research into the causes of, and treatments for, OI. In addition, the foundation provides numerous print, video, and online resources, facilitates peer contact, fosters local support groups, holds biannual conferences, engages in patient advocacy, and provides physician referrals. Fact sheets can be downloaded from the web site.
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