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PRISMS (Parents & Researchers Interested in Smith-Magenis Syndrome)


Address

21800 Town Center Plaza
Suite 266A-633
Sterling, VA 20164 USA

Phone

9722310035

Fax

9724991832

Email Address

[email protected]

Description

The PRISMS (Parents & Researchers Interested in Smith-Magenis Syndrome) is a 501(c)(3) organization, dedicated to providing information and support to families of persons with Smith-Magenis syndrome (SMS) and fostering partnerships with professionals to increase awareness and understanding of SMS. Smith-Magenis syndrome is a rare chromosomal disorder characterized by a specific pattern of physical, behavioral, and developmental features. It is caused by the absence of genetic material (deletion) from a certain region on chromosome 17. Organized and incorporated in the state of Virginia on Feb. 4, 1993, PRISMS, Inc., is governed by a nine-member board of directors. Most board members have children with Smith-Magenis syndrome.

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