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PO Box 475
Freshwater, NSW 2096 Australia
Our mission is to fund medical research so a cure can be found for children battling Sanfilippo today and for those born with it tomorrow. We aim to drive research, enable access to effective treatments and improve the quality of life for Australian children affected by the fatal childhood disease, Sanfilippo Syndrome. This will be achieved by: • Enabling participation in clinical trials or special access to emerging treatments until such time as an effective treatment is developed and available on the market; • Improving the diagnosis path – more accurate and earlier diagnosis to enable appropriate treatment; • Raising awareness of the disease amongst the community, including the medical profession; • Providing diagnosed families with clear, up-to-date information on the disease and the latest medical advances; • Fundraising to achieve the above aims. Facebook: http://www.facebook.com/Sanfilippochildrensfoundation/ Twitter Handle: @SFCFoundtn
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