The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
1586 Sumneytown Pike
Box 1322
Kulpsville, PA 19443 USA
267-613-9811
The Scarring Alopecia Foundation (SAF), formerly known as CARF, is a non-profit rare disease organization that provides funds for research to find effective treatments and a cure for scarring alopecia, a diverse group of rare disorders in which the hair follicle is destroyed and replaced with scar tissue. The result is permanent hair loss. Cicatricial alopecia occurs in otherwise healthy men and women of all ages and is seen worldwide. SAF, in addition to providing funds to research, supports education and advocacy and works to raise public awareness.
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