The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Working together we can change outcomes! The mission of the Smith-Kingsmore Syndrome Foundation is to improve the quality of life for children and families impacted by SKS by supporting cutting-edge research and collaboration among medical professionals and strengthening community through worldwide awareness. Facebook: https://www.facebook.com/Smithkingsmoresyndromefoundation Twitter: https://twitter.com/SmithKingsmore
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NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.
