To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

The Ehlers-Danlos Society


P O Box 87463
Montgomery Village, MD 20886 USA

Email Address

[email protected]


Collaborative research bringing together medical professionals from all over the world to work on ground-breaking treatment. Organizing medical symposiums every two years to update the diagnostic criteria and guidelines for management and care. Bringing together and uniting our community, providing annual conferences to distribute information and create opportunities to interact.  Producing reliable up-to-date medical literature though our esteemed medical and scientific board.  Guiding both patients and medical professionals to information, resources, support, and education.  Uniting support groups and charities from around the world, providing resources and information where needed.  Building chapters so that The Ehlers-Danlos Society becomes a recognized brand globally. One person fighting is a start, but many together build an army.  Giving HOPE to all those whose lives are affected by Ehlers-Danlos syndromes. Facebook:

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.