The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
P O Box 87463
Montgomery Village, MD 20886 USA
Collaborative research bringing together medical professionals from all over the world to work on ground-breaking treatment. Organizing medical symposiums every two years to update the diagnostic criteria and guidelines for management and care. Bringing together and uniting our community, providing annual conferences to distribute information and create opportunities to interact. Producing reliable up-to-date medical literature though our esteemed medical and scientific board. Guiding both patients and medical professionals to information, resources, support, and education. Uniting support groups and charities from around the world, providing resources and information where needed. Building chapters so that The Ehlers-Danlos Society becomes a recognized brand globally. One person fighting is a start, but many together build an army. Giving HOPE to all those whose lives are affected by Ehlers-Danlos syndromes. Facebook: https://www.facebook.com/ehlers.danlos/
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