Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


TSC Alliance



Address

8737 Colesville Road
Suite 400
Silver Spring, MD 20910 US

Phone

301-562-9890

Fax

301-562-9870

800 Number

800-225-6872

Email Address

[email protected]

Description

The Tuberous Sclerosis Complex Alliance (TSC Alliance) is a voluntary non-profit organization dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those afflicted. TSC (tuberous sclerosis complex) is a genetic disorder that causes tumors to form in various organs, primarily the brain, heart, kidney, liver, skin and lungs. People with TSC Alliance often develop epilepsy, autism and learning and behavioral problems. The TSC Alliance is committed to promoting and sponsoring medical research related to the diagnosis, cause, management, and cure of TSC, and ensuring that affected individuals and families have access to appropriate medical services, support services, and resource information. It is involved in the development of public and professional educational programs aimed at increasing awareness of TSC and prompting early diagnosis and effective treatment.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.