NORD and 75 organizations urge Congress to support step therapy reform
Published: May 24, 2022
Tagged in: Access to Innovative Medicines and Therapies
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 75 organizations urge Congress to support step therapy reform
Published: May 24, 2022
Tagged in: Access to Innovative Medicines and Therapies
NORD drafts comments on Senate Health, Education, Labor and Pensions committee’s discussion on FDA Safety and Landmark Advancements Act
Published: May 22, 2022
Tagged in: FDA’s Accelerated Approval Pathway, Expanded Access, Orphan Drug Act
NORD joins with American Academy of Pediatrics and 16 organizations in letter to Congressional Appropriators to support the Pediatric Device Consortia Grant Program at FDA
Published: Apr 27, 2022
Tagged in: Appropriations, Access to Pediatric Therapies
NORD joins a one pager with other patient advocacy organizations in support of Arizona’s House Bill 2144 on biomarker testing coverage
Published: Jan 25, 2022
Tagged in: Access to Innovative Medicines and Therapies, Gene Therapies
NORD joins Friends of Cancer Research and 50 other organizations in letter to the Senate supporting the nomination of Dr. Robert Califf to be Commissioner of the FDA
Published: Dec 1, 2021
Tagged in: Access to Innovative Medicines and Therapies, Advancing Rare Disease Research and Regulatory Science