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Contact Us

NORD is leading the fight to improve the lives of patients with rare diseases.
For more information or to learn more, use the contact details below or sign up for email communications here.

So that we can best assist you, please use the form below if you are seeking additional information from our team.

Please submit your inquiry only once to ensure a timely response.

National Headquarters

1900 Crown Colony Drive, Suite 310
Quincy, MA 02169
Phone: 617-249-7300
Fax: 617-249-7301

Danbury, CT Office

55 Kenosia Avenue
Danbury, CT 06810
Phone: 203-744-0100
Fax: 203-263-9938

Washington, DC Office

1779 Massachusetts Avenue
Suite 500
Washington, DC 20036
Phone: 202-588-5700
Fax: 202-588-5701

Communication Center Hours

Patients can contact NORD’s Patient Services Representatives at 1-800-999-6673 during the following hours:

Monday-Thursday 8:30 am – 7:00 pm EST
Friday 8:30 am – 6:00 pm EST

Si deseas hablar con alguien en espanol por favor llame al (844) 259-7178 para asistencia.

Please note that NORD provides this information for the benefit of the rare disease community.  NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments.  Patients must rely on the personal and individualized medical advice of their qualified healthcare professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.

International Inquiries

For individuals outside of the U.S. seeking information or resources from NORD, please note that we will do our best to respond to your message but strongly suggest that you contact your national rare disease organization using the quick links below. For a full listing of NORD’s global partner organizations, visit Rare Diseases International (RDI).

Media Inquiries

If you are a news media professional with a question for NORD, please submit your request using the form here. Please include as much information as possible with your request.

The form below is dedicated to responding to requests from credentialed journalists. If this is a non-media inquiry please reach out to NORD’s main line. You can reach NORD by dialing 203-744-0100 or by submitting the form below.