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Project RDAC Resources & Materials

A Rare Disease Advisory Council (RDAC) provides a platform for the local rare disease community to have a stronger voice in state government. NORD’s Project RDAC resources and materials are here to support each step of an RDAC’s journey:

  • Learn More & Get Started
  • Legislative Advocacy
  • RDAC Implementation

Learn More & Get Started

Looking for an overview of Project RDAC? Looking to start an RDAC in your state? NORD wants to work with YOU to establish well-organized, high-functioning RDACs in every state. Let’s get started!

Legislative Advocacy

Make your voice heard! Work with NORD and your community to influence the introduction, enactment, or modification of RDAC legislation. Here’s how!

RDAC Implementation

Help an RDAC have a positive impact on the rare disease community! Build on your advocacy by helping to create a strong RDAC that effectively works to elevate the voice of the rare community. Get involved!