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Meeting Schedule

The Council meets twice annually, providing opportunities to interact with leaders on health policy issues, legislative and regulatory initiatives, advances in biomedical research, treatment innovation, commercialization of orphan products, changes in standards of care and best practices, and trends affecting the care of people with rare diseases.

 

Meeting Schedule

Teleconferences

Teleconferences provide an opportunity to connect on a regular basis with other stakeholders and thought leaders to exchange up-to-the-minute information on emerging challenges and opportunities.