Scroll
To Top

NORD 35yrsGrowing

 

There are 30 million Americans living with a rare disease – that’s 1 in 10. More than half are children. For 35 years, NORD has been leading the fight to improve the lives of patients with rare diseases. We do this by supporting patients and organizations, accelerating research, providing education, disseminating information, raising public awareness, and driving public policy. As we celebrate our 35th Anniversary, we look forward to the next 35 years and continuing our mission.

Help us commemorate this milestone and support NORD’s work for the rare disease community by making a donation today.

35 Years and Growing: NORD's Service to the Rare Disease Community

Since 1983, NORD has been leading the fight to improve the lives of patients with rare diseases. Check out our blog post which highlights 35 examples of how NORD impacts the rare disease community. 

Testimonials from Friends of NORD 

  • “NORD has been a beacon for us at PSC Partners. From being an organization that was growing alone, we are now an organization that is using all the cues, guidance and opportunities offered to us by NORD to create networks with stakeholders we couldn’t even dream of connecting with before. We hope we can give to other rare disease organizations all that we are learning from NORD.”
    –Rachel Gomel, PSC Partners
  • “I chose to become an ambassador to raise awareness and educate our elected officials of the many people in the Commonwealth of Virginia with rare diseases like two of my children and to put faces to these disorders. I want to ensure that this population in our state has appropriate access to medical expertise, treatment and services and economic support for costly expenses associated with rare disease or disorders” –Jana Monaco, Virginia Rare Action Network State Ambassador
  • “For both ATOF and myself, attendance to last year’s Summit changed our nonprofit and put us years ahead in research and collaborations with our medical partners. It is imperative we are able to participate again this year.  We are saving lives because of you.” Andrea Taylor, A Twist of Fate

 

sm-quincy-me

Fundraise for NORD

Facebook now makes it easy for individuals to create online fundraisers for participating organizations. As part of our 35th Anniversary, NORD has launched these fundraising tools on our Facebook page for the first time! Show your support for NORD during our 35th anniversary celebration by creating a fundraiser of your own following the steps outlined below.

-1- Visit facebook.com/NationalOrganizationforRareDisorders/fundraisers

-2- Click the Raise Money button

-3- Set a realistic goal for your fundraiser that can run for 1-2 weeks

-4- Set an end date of 1-2 weeks out from your start date

-5- Name it “35 Years and Growing for the Rare Disease Community”

-6- Describe why you’re raising money such as:

There are 30 million Americans living with a rare disease – that’s 1 in 10. More than half are children. For 35 years, NORD has been leading the fight to improve the lives of patients with rare diseases by supporting patients and organizations, accelerating research, providing education, disseminating information, raising public awareness, and driving public policy.  As NORD celebrate its 35th Anniversary, the organization looks forward to the future and to serving the rare disease community for many years to come. 

Help us commemorate this milestone and support NORD’s work for the rare disease community by making a donation to my fundraiser in honor of {insert your personal connection to the rare disease community.}

-7- Upload a photo – feel free to use this one here.