Advocate Archives - NORD (National Organization for Rare Disorders)

Georgia Becomes 22nd State to Establish a Rare Disease Advisory Council

Written by Rohan Narayanan on May 6, 2022

New council will help educate medical professionals, government agencies, legislators, and the public about rare diseases, research and treatment

May 6, 2022, Atlanta, GA – This week, Governor Brian Kemp signed legislation into law to establish a Rare Disease Advisory Council (RDAC) in Georgia. This advisory body will be comprised of… Read More

Today, Tell Congress We Need #CuresNow

Written by Lisa Sencen on June 7, 2016

Today, June 7, join rare disease advocates around the country and tell your Senators to support the Senate Cures Legislation. This month is the last chance for Senate Cures to pass before the Senate is out of session until after the November election.

Senate… Read More

RareAction Network℠ Releases May/June State Policy Legislative Tracker

Written by Heidi Ross on May 31, 2016

RareAction continues to make strides around the country for the 1 in 10 Americans with rare diseases.

In this version of the State Policy Legislative Tracker, there is an increase in the bills being supported… Read More

Today is Rare Disease Day®

Written by Jennifer Huron on February 29, 2016

On this day, join the 30 million Americans who are making the voice of rare diseases heard. Your participation on Rare Disease Day means more awareness and hope for 1 in 10 people and families across the country, and others… Read More

Archives for: May 6th, 2022