Levy-Yeboa Syndrome Archives - NORD (National Organization for Rare Disorders)

NORD Announces over $100,000 in Grant Funding Available for Rare Disease Research

Written by Rohan Narayanan on April 29, 2022

Three RFPs Now Open for Qualified Researchers through NORD’s Jayne Holtzer Rare Disease Research Grants Program

April 29, 2022, Washington, DC – Today, the National Organization for Rare Disorders (NORD®) announced three new requests for proposal (RFP) for grant funding related to the following rare diseases: Autoimmune… Read More

Spencer and Levy-Yeboa Syndrome, the Story of Our Son

Written by Lisa Sencen on June 27, 2018

NORD’s Rare Disease of the Week is Levy-Yeboa Syndrome, a very rare inherited, multi-system disorder. For more information about this disorder, you can visit the Levy-Yeboa Syndrome Rare Disease Report here. The guest blog post below was written by two parents of a child, Spencer, who passed away… Read More

Archives for: April 29th, 2022

NORD Announces over $100,000 in Grant Funding Available for Rare Disease Research

Written by Rohan Narayanan on April 29, 2022

Three RFPs Now Open for Qualified Researchers through NORD’s Jayne Holtzer Rare Disease Research Grants Program

Spencer and Levy-Yeboa Syndrome, the Story of Our Son

Written by Lisa Sencen on June 27, 2018

Alone we are rare. Together we are strong.®