Written by Rohan Narayanan on April 25, 2022
April 25, 2022, Washington DC—-The National Organization for Rare Disorders (NORD) today issued a statement of tribute to the life and service of the late Senator Orrin Hatch (R-UT), who passed away over the weekend.
“Over his many years in Congress, Senator Hatch demonstrated his commitment to… Read More
Written by Jennifer Huron on June 25, 2018
2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary. For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate. Our policy, research and other efforts have played a significant… Read More
Written by Jennifer Huron on May 7, 2018
2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary. For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate. Our policy, research and other efforts have played a significant role over the years, advocating for… Read More
Written by Jennifer Huron on March 17, 2016
Continuing its annual tradition of recognizing the people, organizations, advocates and companies who are making a difference in the fight against rare diseases, the National Organization for Rare Disorders (NORD)® announces the 2016 Rare Impact Award recipients to be… Read More
Written by Jennifer Huron on September 15, 2015
Today, the Senate introduced the Advancing Targeted Drugs for Rare Diseases Act of 2015 (see press release below). According to NORD President and CEO Peter L. Saltonstall, “NORD supports legislation that would facilitate the development and approval of safe and effective new… Read More