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Educational Initiatives

For 35 years, NORD has been a trusted source for providing critical educational resources to the rare disease community. NORD’s educational initiatives include innovative partnerships and programs to empower patients and their families, inform students of all ages, and support the vitally important work of physicians and other healthcare professionals.

Some of the educational programs and resources we offer for patients, students, and medical professionals include:

Rare Disease Database
The Rare Disease Database provides reports on more than 1,200 rare diseases for patients and their families.

Continuing Medical Education
This program will raise diagnostic awareness of typical patient symptoms and treatments that are actually atypical and continue to manifest overtime. Diagnostic resources, tools and detailed infrastructure of resources for both providers and patients will be demonstrated in this program.

Students for Rare
Graduate and undergraduate students can launch a Students for Rare Chapter at their university to get students informed and interested in rare disease research and awareness. Additionally, high school students have the opportunity to launch a Students for Rare Club at their school to promote rare disease education and awareness.

Joint Publications with NORD
Through its partnerships with Frontline Medical Communications and Medscape, NORD provides useful medical publications and video resources for clinicians as well as researchers.

To learn about other educational initiatives, visit one of the links below to find resources tailored to your needs.