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Raise Awareness

Join NORD in raising awareness of the challenges of living with a rare disease. Share information on social media, bring literature to your physician, work with your local schools, and contact your local newspaper. We can all be educators, and NORD will provide suggestions and resources to help.

NORD’s Rare Disease Fact Sheet provides the need-to-know information on rare diseases as a whole. Download and print this fact sheet to help us spread the word about rare diseases and how they affect our community.

Get the Facts!

Resources to Raise Awareness

What is it like living with rare disease?

What is a rare disease?

Rare Disease Day

Rare Disease Day is observed on the last day of February each year. This is a time when partners around the world share messages of awareness and support. Visit the Rare Disease Day US website, hosted by NORD, to follow this year’s campaign.