Rare Cancer Day 2021 Archives - NORD (National Organization for Rare Disorders)

Rare Cancer Day 2021 Brings Together Rare Disease Community and Advocates

Written by Rohan Narayanan on September 29, 2021

Washington, DC, September 29, 2021— Tomorrow, the rare disease community will celebrate the third annual Rare Cancer Day. Spearheaded by the National Organization for Rare Disorders (NORD®) Rare Cancer Coalition™, Rare Cancer Day is observed on September 30 to highlight the challenges patients face and to unify individuals… Read More

Head of the Herd: David Arons, National Brain Tumor Society

Written by Maia Craig on September 28, 2021

David Arons is the Chief Executive Officer of the National Brain Tumor Society (NBTS). He shares a passion for incorporating diversity, equity, and inclusion within the rare cancer and rare disease space.

1. How did you get started in the rare disease community?

I was motivated by my father… Read More

Archives for: September 29th, 2021

Rare Cancer Day 2021 Brings Together Rare Disease Community and Advocates

Written by Rohan Narayanan on September 29, 2021

Head of the Herd: David Arons, National Brain Tumor Society

Written by Maia Craig on September 28, 2021

Alone we are rare. Together we are strong.®