Celebrating Advocacy, Action and a Year of Success Building Rare Disease Advisory Councils

Written by Rohan Narayanan on December 15, 2021

Seven Rare Disease Advisory Councils Established Since Launch of NORD’s Project RDAC

Washington, DC – December 15, 2021 – In 2015, the first rare disease advisory council was created in North Carolina by patients, caregivers, families, and providers. This year, the National Organization for Rare Disorders (NORD), the leading advocate for… Read More