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Archives for: November 18th, 2020

NORD Launches Project RDAC, Announces Inaugural Meeting on December 16

Written by Valaree DonFrancesco on November 18, 2020

Washington, DC, November 18, 2020—With a mission of empowering and equipping the rare disease community to effectively engage decision-makers within their state governments, the National Organization for Rare Disorders (NORD®) has launched an initiative that will assist in building well-organized, high-functioning RareRead More

NORD Welcomes Rachel Sher as Vice President of Regulatory and Government Affairs, Lesli Nordstrom as Director of Marketing and Communications

Written by Lisa Sencen on January 17, 2019

Washington, DC, January 17, 2019–The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has announced two additions to its management team, effective immediately.

Rachel Sher joins NORD as Vice President of Regulatory and Government Affairs,… Read More

Alone we are rare. Together we are strong.®