About the Corporate Council
The NORD Corporate Council is composed of a select group of leading companies committed to helping people with rare diseases. Members include pharmaceutical, biotech and medical device companies that are developing or marketing therapeutic or diagnostic products, as well as companies that are engaged in other aspects of healthcare for the rare disease/orphan product community such as specialty pharmacies, distributors, contract research organizations, and integrated healthcare systems.
Membership Benefits
Membership on the Council demonstrates a commitment to the identification, diagnosis, treatment and cure of rare disorders through programs of education, advocacy, research and service. The Council provides unique opportunities for companies to engage with experts in the rare disease community, not only with patient advocacy organizations that constitute NORD’s members, but also with top scientific, clinical and policy experts and leaders in the worldwide rare disease community.
Specific benefits for Pre-Clinical Development, Clinical Development, and Approved Product Members include:
- Complimentary participation in Corporate Council Member meetings
- Invitations to participate in monthly policy calls
- Option to participate in NORD’s Patient Advocacy and Engagement working group
- Timely news alerts
- Networking opportunities
- Special recognition
Special Benefits for Health Care Business Members Include:
- Complimentary participation in Corporate Council Member meetings
- Option to participate in NORD’s Patient Advocacy and Engagement working group
- Timely news alerts
- Networking opportunities
- Special recognition
Membership Levels
- Pre-Clinical Member
Companies that currently have one or more orphan product candidates in pre-clinical research: $5,000 - Clinical Development Member
Companies that currently are not marketing but have one or more orphan product candidates in clinical trials: $10,000 - Corporate Product Member
Companies that currently market one or more orphan drugs or devices: $25,000 - Business Member
Companies that are essential partners to pre-clinical, clinical and product members: $20,000
Corporate Council Resources
Corporate Council Meetings
NORD sponsors two annual meetings and on-going teleconferences. The major areas of focus are policy and regulation, patient access and reimbursement, and research and intelligence. View events >
COUNCIL CODE OF CONDUCT
All companies who join the Council must adhere to the Code of Conduct outlining NORD’s interactions with its corporate members. More >
Additional information
For more information about the Corporate Council, email [email protected].