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X-WR-CALNAME:NORD (National Organization for Rare Disorders)
X-ORIGINAL-URL:https://rarediseases.org
X-WR-CALDESC:Events for NORD (National Organization for Rare Disorders)
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20210314T070000
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TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20211107T060000
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TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
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DTSTART:20221106T060000
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DTSTART;VALUE=DATE:20211115
DTEND;VALUE=DATE:20221231
DTSTAMP:20220526T054238
CREATED:20220222T193120Z
LAST-MODIFIED:20220222T193120Z
UID:83235-1636934400-1672444799@rarediseases.org
SUMMARY:Raras Com Ciência
DESCRIPTION:
URL:https://rarediseases.org/event/raras-com-ciencia/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211203
DTEND;VALUE=DATE:20220301
DTSTAMP:20220526T054238
CREATED:20220222T193120Z
LAST-MODIFIED:20220222T193120Z
UID:83239-1638489600-1646092799@rarediseases.org
SUMMARY:SpectacuRARE Fest 2022
DESCRIPTION:
URL:https://rarediseases.org/event/spectacurare-fest-2022/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211206
DTEND;VALUE=DATE:20220619
DTSTAMP:20220526T054238
CREATED:20220222T193120Z
LAST-MODIFIED:20220222T193120Z
UID:83238-1638748800-1655596799@rarediseases.org
SUMMARY:Vaincre la Cardiomyopathie et L'Insuffisance Cardiaque
DESCRIPTION:
URL:https://rarediseases.org/event/vaincre-la-cardiomyopathie-et-linsuffisance-cardiaque/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211213
DTEND;VALUE=DATE:20220224
DTSTAMP:20220526T054238
CREATED:20220222T193141Z
LAST-MODIFIED:20220222T193141Z
UID:83377-1639353600-1645660799@rarediseases.org
SUMMARY:Primer concurso de videos sobre Enfermedad Raras de la Península de Yucatan
DESCRIPTION:
URL:https://rarediseases.org/event/primer-concurso-de-videos-sobre-enfermedad-raras-de-la-peninsula-de-yucatan/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220504T123000
DTEND;TZID=America/New_York:20220504T164000
DTSTAMP:20220526T054238
CREATED:20220301T221019Z
LAST-MODIFIED:20220428T144219Z
UID:84117-1651667400-1651682400@rarediseases.org
SUMMARY:Externally-led Patient-Focused Drug Development Meeting (EL-PFDD) for Post-Transplant Lymphoproliferative Disease (PTLD)
DESCRIPTION:Click here to download the meeting agenda.
URL:https://rarediseases.org/event/el-pfdd-ptld/
CATEGORIES:For Patients and Families,Patient Meetings,For Patient Organizations
END:VEVENT
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